Quality of life in Swedish children with congenital ichthyosis

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Quality of life in Swedish children with congenital ichthyosis

Congenital ichthyosis encompasses a large group of keratinizing disorders with widespread scaling and a variable degree of erythema. Little is known about the quality of life in children with congenital ichthyosis and the impact of the disease on their family. Fifteen children aged 5-16 years with lamellar ichthyosis, Netherton's syndrome, epidermolytic hyperkeratosis or Harlequin ichthyosis, w...

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Quality of Life in Children and Adolescents with Congenital Heart Diseases in Zahedan, Iran

BackgroundLife expectancy has increased in congenital heart diseases (CHD) patients and the interest has risen considering the quality of life (QOL). The study aimed to compare patients and proxy-parents reports on CHD children' QOL.Materials and MethodsThis cross-sectional study performed on 165 CHD patients aged 2-18 years during 2016 using Pediatric Quality of Life 3.0 (PedsQL™ 3.0) inventor...

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Quality of life in Swedish children with eczema.

The burdens of childhood eczema are many and some can be assessed with quality of life (QoL) questionnaires. Seventy-eight Swedish children with mild-to-severe eczema ("atopic dermatitis", prurigo Besnier), fulfilling established diagnostic criteria, were investigated for the effect of eczema on QoL. This was measured with validated questionnaires: the Infants' Dermatitis Quality of Life Index ...

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Report of a Congenital Ichthyosis

A case of congenital ichthiosis 1s presented. Histo­logic pattern and the treatment is discussed. 

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The effect of discharge planning on quality of life in mothers of children with congenital heart disease undergoing surgery

Background & Aim: Caring for children with congenital heart disease is very challenging for their parents, and the mothers of these children have a low quality of life. The aim of this study was to evaluate the effect of discharge planning on quality of life among mothers of children with congenital heart disease undergoing surgery. Methods & Materials: In this quasi-experimental study, 72 mot...

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ژورنال

عنوان ژورنال: Dermatology Reports

سال: 2010

ISSN: 2036-7406,2036-7392

DOI: 10.4081/dr.2010.e7